Research
What is WebEase?
WebEase (Web Epilepsy, Awareness, Support and Education) is an on-line self-management program for people with epilepsy. Because living with epilepsy can be difficult for some people, WebEase was designed to help people with epilepsy manage their stress, sleep, and medication adherence. The program is based on proven techniques such as motivational interviewing and stages of change—used to help people with other chronic disorders better manage their health. We are currently seeking individuals who are willing to use the program and share with us their thoughts. By using the program and completing three surveys, we will be able to determine if the program is beneficial for people with epilepsy.
The program was developed by a team of researchers and doctors who treat patients with epilepsy. The program offers information on three major topics: 1) medication taking, 2) stress and 3) sleep management as it relates to epilepsy. Users enter information about their experience on these issues and get specific feedback. WebEase also has a discussion board where people with epilepsy can share experiences and get support from others. Participants can complete fun quizzes, read fact sheets and see links to other authoritative websites on epilepsy.
Why is this program important?
According to the Centers for Disease Control and Prevention (CDC), epilepsy affects an estimated 2.5 million people in the United States, and more than one-third of people with epilepsy continue to have seizures despite treatment. Each year, about 200,000 new cases of epilepsy are diagnosed in the United States. Adults over age 65 and children younger than age 2 are most likely to be affected.
Living with epilepsy can be very challenging, and over time, a person learns strategies to deal with medication requirements, seizures, and side effects of treatment. WebEase uses the internet to allow people with epilepsy to access information, discuss important topics, and set goals to manage medication, stress, and sleep. Improving the ability of people with epilepsy to better manage their lifestyles is our goal.
Who is sponsoring the research study?
The research study to test WebEase is based at the Rollins School of Public Health at Emory University, and is funded by the Centers for Disease Control and Prevention.
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Team WebEase Rollins School of Public Health, Emory University Dept. of Behavioral Sciences and Health Education 1518 Clifton Rd. NE Room 542 Atlanta, GA 30322 404.727.8741 TeamWebEase@gmail.com |
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Centers for Disease Control and Prevention Epilepsy 4770 Buford Hwy, NE MS K-51 Atlanta, GA 30341 |
How does the research study work?
Before beginning the study, each person completes a brief survey about medications, stress, and sleep. Then participants work through the WebEase program. WebEase consists of three modules: medication, stress, and sleep. Each module lasts 2 weeks, and includes an interactive session geared specifically to each person's needs. During the study, each person keeps a diary of medications, stress, sleep, and seizures. This will eventually allow the person to see changes over time. After completing the WebEase program, participants complete two more brief surveys about six weeks apart.
About half of the people who sign up for the research study will be asked to complete two surveys about 6 weeks apart before beginning the WebEase program. These individuals will only complete one survey after the end of the program.
Who can qualify for the research study?
To participate in WebEase, you must:
- Be 18 years of age or older
- Understand and speak English
- Have been diagnosed with epilepsy
- Have been on at least one AED for more than 3 months
- Have access to the internet
- Be willing to participate
- Must not have participated in WebEase in the past
If you would like to participate in the WebEase research study, or if you need more information, please contact Team WebEase at:
TeamWebEase@gmail.com
404.727.8741
